Tort Liability in Genetic Counselling

It is the ‘welfare principle’2 through which prospective children’s interests will be protected, through this clinicians have the opportunity to scrutinize those seeking access to assisted conception. It has been argued that the intention of parliament at the time was to reduce criticism for making assisted conception available to women without a male partner (Morgan & Lee:2001:164), however, MP’s stressed that it was the welfare of the child that was the real concern3.

Despite this, the inclusion of such a clause has undoubtedly placed patients wishing to use assisted conception under scrutiny by medical professionals who are not evidentially shown to be best placed to make decisions about their future parenting abilities. The inclusion of a welfare principle is perhaps under protective of potential children as medical clinicians cannot fully assess their suitability as parents, whilst at the same time is too ‘parental’ in that it interferes unnecessarily with patient’s reproductive autonomy.

Following this, the ‘welfare principle’ has been described as ‘an interference with infertile peoples negative liberty’ ,it has created a situation where those who are fertile have a zone of privacy protecting their reproductive autonomy whilst those who are infertile must relinquish this privacy (Jackson:2002:178). By doing so the law is undermining a person’s ability to control their life (Prialuz:2008:174).

There is however a need for some protection of the unborn child, a less intrusive approach to the welfare principle could be used where the clinician is only assessing whether non-existence of this child would be better than existence, clearly, there will be few cases in which this is the case (Harris:2008:33), thus the reproductive autonomy of the ‘patients’ will be protected. However, this would not address the criticism that the current law is under protective of future children’s interests.

The current law involves clinicians taking into account several factors in order to come to a decision about the patient’s suitability as parents. The evidential proof of why and how the clinician is best placed to make this subjective decision is not seen. It would be inconceivable to put fertile couples and women who fall pregnant through the scrutiny of a ‘welfare principle’ test in order to carry the pregnancy to term.

As Capron suggested, giving advice to a fertile friend wishing to reproduce who you do not believe is suitable is a completely different thing to allowing the judgement to be given legal effect (Capron:1997:665). Undoubtedly, we would not sterilise a fertile criminal, as to do such a thing would be to grossly invade their personal and bodily integrity (Jackson:2002:177). Thus, it’s hypocritical that the welfare of future children born by assisted conception is seen as critical when children are born every day from fertile couples who have undergone no scrutiny of their future parenting abilities.

Clinicians do not receive training or enough information about the ‘patients’ to make decisions about a child’s future. Taking adoption as an example, intense scrutiny of the couple, including home visits is used to discover the suitability of a couple to be parents (Lord:2006:Assessment Criteria) . Infertility clinicians on the other hand have little information available to them. Douglas has even suggested that S. 33 of the HFEA, has led some clinicians to believe that they are prohibited from communicating with third parties about the suitability of the patient.

With such little information, it’s hard to see how the welfare principle actually protects the interest of the future child (Douglas:1993:53). Although all future children do deserve to be brought into a loving environment, the inclusion of a welfare principle can never satisfy the extensive ways in which a child may be unhappy. A particularly poignant comparison comes with ‘wrongful birth’ actions in tort law. The courts have made it clear in Mckay v Essex Area Health Authority4, that the benefits of being brought into the world outweigh any disadvantages.

This position does not sit well with the ability of medical professionals to make a judgement about the quality of life a future child would have if conceived. Ackner LJ stated that he was not prepared to undertake a balancing exercise between whether a child’s existence was in its best interests or not. It seems peculiar that the courts are unwilling to compare the value of a child’s existence yet the law requiring clinicians with little information to make such decisions is deemed ‘under protective’ of future children (Jackson:2002:202).

There is clearly merit in the inclusion of a welfare principle in order to protect future children. However, the current model places too much scrutiny on patients wishing to use assisted conception and is arguably used as a rationing tool for the NHS (Daniels:1985:79) rather than being specifically concerned with the welfare of the child. Pennings (1999) has suggested the use of a ‘reasonable welfare principle’ this would allow assisted conception where the child born will have a ‘reasonably happy life’.

This would allow for patients autonomy to be respected whilst also providing a way of refusing treatment in extreme cases (http://www. hfea. gov. uk/docs/ELC_04_Annex_C_Sept04. pdf at pg5). Thus, in one sense the HFEA does not provide adequate protection for future children born through the use of assisted conception, as clinicians are extremely unequipped to make such decisions, whilst at the same time the HFEA provides too much protection for future children as it interferes unnecessarily with patients reproductive autonomy.

Overall, it is arguable that the law is overprotective in requiring the full use of the abortion act in relation to the use of mifepristone for termination. There seems to be little evidence to show the benefits of placing women under the scrutiny two doctors for a simple procedure which is commonly approved. There is little purpose in S. 1 (a) of the abortion act, creating the argument that the law needs to be brought up to date with social attitudes towards women’s reproductive autonomy.

However, this is extremely unlikely as it’s for Parliament to reform the law, which it has yet to do since the Act was passed in 1967, alongside this, the current law is similar to that of many other countries, giving the argument that it is the only feasible way in which Abortion can be governed. At the same time, the law is too under protective of future children to be conceived through assisted conception, as S.

Appears not to be concerned with the best interests of the child, but merely serves to restrict reproductive autonomy and place an undue burden on those who are infertile. There is no evidence to suggest that the inclusion of the welfare principle has any positive impact upon the wellbeing of future children. Despite this, if clinicians were given training and enough information such as the scrutiny of prospective parents undertaken during the adoption process, the principle may protect the wellbeing of future children.


Capron, A M ‘Tort Liability in Genetic Counselling’ (1997) 79 Columbia Law Review 618-680 Daniels, N ‘Just Health Care’ (Cambridge: Cambridge university press, 1985) Department of health, 1999b Abortion Statistics 1998. London: HMSO Douglas G ‘Assisted Conception and the Welfare of the Child’ (1993) Current legal problems 46(2), 53-57 Doyal, Len (1999) ‘Informed Consent: A Response to Recent Correspondence’. British Medical Journal 316:1477 Dworking Ronald (1993) ‘Life’s Dominion: An Argument about Abortion and Euthanasia’. London: HarperCollins

There is a long standing debate surrounding the ethics of both abortion and assisted conception. The moral reprehensibility of both, although touched on, are outside the ambit of this essay. The purpose of this essay is to assess the current …

Genetic testing is the analysis and examination of DNA, which is a line of code carrying instructions of your body’s function. Genetic testing reveals changes in the genes, usually things that will cause diseases and illnesses. Just because genetic testing …

The main purpose of this article is to present the current controversy of utilizing electronic records (EMR) in place of paper records in today’s medical environment. Specifically, the article mentions the pros of an EMR as being; making it easier …

Since the time when there was a heightened media exposure of Dolly—the first cloned sheep—it seems that the issue of genetic engineering has never withered. In fact, the debates surrounding the hybrid of science and technology are far from over …

David from Healtheappointments:

Hi there, would you like to get such a paper? How about receiving a customized one? Check it out